Below, a quote from an article by Marie Tae McDermott that originally appeared in the Wellness Section of The New York Times blog. In her article, Marie recalls the moments after her mother was diagnosed with lung cancer.
Know someone who is diagnosed with a chronic illness? Do they live far away? How do you show them support and that you’re thinking of them?
We’ve been highlighting partners from this year’s Health Activist Awards. Today’s post is from The STD Project.
Jennelle, founder of The STD Project, has faced stigma and animosity since receiving her diagnosis. In a blog post that features the transcription from her placement in Now Magazine, she takes readers through her emotional journey after being diagnosed.
Sarah Coglianese was diagnosed with Amyotrophic Lateral Sclerosis (ALS) at the age of 33. A neurological disease resulting in paralysis, ALS has no cure or viable treatments, and the average life expectancy is 2-5 years from diagnosis. Now 36, Sarah balances her work as an ALS activist with her work as the mom of an almost-5-year-old. Her website, Speed4Sarah.com, is devoted to raising awareness of ALS through the stories and faces of people who are living with the disease.
WEGO Health is hosting this week’s Health Activist Twitter chat on Thursday, February 19th, (rather than February 17th,) at 2pm EST.
Joining us as hosts is Global Genes, one of the leading rare disease patient advocacy groups in the world. During the one hour chat, we will be testing your knowledge of rare disease facts, talking about how you will be celebrating Rare Disease Day and sharing rare disease resources. Winners will receive a WEGO Health gift card and some WEGO Health swag!
Don’t forget to join our chat at 2pm EST on February 19th: #RARETalk