Tuesday, September 22, 2009

Spotlight: Laurie Edwards


Spotlight: Laurie Edwards
Websites: A Chronic Dose
Twitter: @achronicdose
Blogging since: 2006
Occupation: Writer, consultant and professor
Favorite vacation spot: Cape Cod, MA; Ireland; Napa/San Francisco, CA.

What made you start blogging?
I started blogging as a way to gauge my audience and connect with other young adults living with chronic illness. It was great to hear from people who were so similar to me in so many ways--even if our diagnoses were different, especially the rare disease patients. I also felt like I’d accumulated a lifetime of experience as a patient. So I felt that sharing and exchanging that knowledge with other patients would be mutually beneficial. Now, a few years into it, I’ve gotten to know some amazing patients, physicians, and other healthcare people that I continue to learn from. It’s been a lot of fun!

Read the entire Spotlight Interview on Vanessa's Blog

Monday, September 21, 2009

Confused About the Obama Healthcare Plan? So Are Most Americans

The weekend after President Obama's healthcare address to Congress, WEGO Health partnered with global strategic branding firm Siegel+Gale to survey 1,042 members of the general public, and 102 Health Activists to find out how many people truly understand the plan.


What we learned is that only 36.9% of Americans believe they understand the plan. Most respondents couldn’t identify key aspects of the proposal -- including funding, who would be covered by a public option, and when the plan would go into effect.


Key findings of the study (you can read the full release on our press page) include:


Only 16.5% of the public believes the plan would not add “one dime” to the federal deficit, and 36.1% believe that the plan will add a “massive amount” to the deficit


• When asked about how the plan would be funded, less than one-third of the respondents cited one of the key funding sources that Obama mentioned – fines to be levied on large companies that don’t offer health insurance to their employees


Almost 20% of respondents answered that funding would come from a fine levied against wealthy individuals – an answer included in the survey questions that has never even been discussed


This speaks to the confusion in the media, the complexity of the issue, and the emotions such a large plan creates. “Clearly the whole health care issue is fraught with complexity, political in-fighting, and emotion that is not helped by poor media coverage,” says Alan Siegel, Chairman and Founder of Siegel+Gale.


• While Health Activists were significantly more accurate than the average consumer on most points, the majority also reported a low understanding of the President’s plan


This last point fits what we know of the Health Activists here on WEGO Health. “Sophisticated Health Activists are power users of online tools, and each Activist influences thousands of others through social media,” noted Jack Barrette, WEGO Health’s CEO, “91% agreed that healthcare reform is a critical issue in the online world. But Health Activists also confirmed that typical consumers they encountered online had a poor comprehension of the Obama health care plan.”


What’s your take on the situation? Do you find yourself confused about the details of the healthcare plan?


How can online communities like WEGO Health help -- both to educate Health Activists, and to inspire them to share what they’ve learned -- about the specifics of the Obama healthcare plan?

Wear Purple for World Alzheimer's Day

A few of us here at WEGO Health headquarters wore purple to commemorate World Alzheimer's Day and help increase awareness about this year's theme, "Diagnosing Dementia: See It Sooner":



See more pictures of WEGO Health at work, and share your World Alzheimer's Day pictures on our Facebook Fan Page.

Our Community Leader Amanda also has some great suggestions on how to participate in this year's World Alzheimer's Day, but if it's too late for you to wear purple today, The Alzheimer's Association has some great suggestions on other ways you can "Go Purple" throughout September.

Looking to connect with other Alzheimer's Disease Health Activists?
How will you be participating in World Alzheimer's Day this year? Let us know in the comments!

Thursday, September 17, 2009

Community Leader Ellen's Recent Interview with Lisa Copen

Health Activist Lisa Copen joins WEGO Health as the founder of National Invisible Chronic Illness Awareness Week. This year it is September 14-20, 2009 and there are a handful of ways to get involved, including a free 5-day virtual conference. Lisa is on a blog tour to help people know about the event and how it can specifically encourage you.

Find out how more about National Invisible Chronic Illness Awareness Week, check out the entire interview on Ellen's blog.

Thursday, September 10, 2009

Upcoming Insight Groups: High Risk Pregnancy Health Activists

In our ongoing work to empower Health Activists, we are holding focus groups for people who are active contributors to the online high risk pregnancy community.

These focus groups are held remotely, participation involves calling in to a conference call and joining an online meeting.
Focus groups will be held at Noon ET, 4PM ET, 6PM ET and 9PM ET on Thursday, October 1st.

Each participant will receive a $25 Amazon.com gift certificate.

Please note: These groups will take one hour and will require participants to be online and on the phone at the same time.

We are looking for people who:
1) Stay current on High Risk Pregnancy news and information
2) Are active contributors to online health communities


If you are interested in joining us on Thursday, October 1st use the link below to take a short survey to see if the group might be appropriate for you:

High Risk Pregnancy Insight Group Survey

Friday, September 4, 2009

Internet Addiction Disorder (IAD) - Compulsion or Addiction?

No doubt you've heard something about "internet addiction." To some, it might seem like a joke or exaggeration. But, infact, more and more people are turning to the Internet or other similar types of media in an excessive, life-altering manner. But the real question is–is IAD an addiction or more of a coping method to deal with other mental health problems?

From wikipedia: "Internet addiction disorder (IAD), or, more broadly, Internet overuse, problematic computer use or pathological computer use, is excessive computer use that interferes with daily life. These terms avoid the distracting and divisive term addiction and are not limited to any single cause." IAD started as a mythical disorder that was based off of the newly diagnosable gambling addiction in 1995.

Supporters of disorder classification often divide IAD into subtypes by activity:
• excessive viewing of pornography
• overwhelming and excessive gaming
• inappropriate involvement in online social networking sites or blogging
• Internet shopping addiction


Some supporters of IAD would like to see this type of addiction added to the next version of the DSM-V, which will be released in 2012. Before this happens, though, IAD needs to be better defined to see if it's more of a obsession, compulsion, or self-medication for mental problems like depression. People who suffer from IAD hope to be considered under the Americans with Disabilities Act (in fact, one case is currently pending where a man claims his IAD is in response to PTSD).

Supporters in the medical community believe that IAD affects a person because it alters their mood a lot like other addictions, and that change in body chemistry can become addictive. They tend toward classifying IAD as a compulsion or as a psychological escape (because it is often triggered by anxiety or stressful situation).

Oppositions come from those who believe that the internet is a social environment, which can't really cause a person to be addicted. (You can't be addicted to your hometown, for example). "For many patients, overuse or inappropriate use of the Internet is merely a manifestation of their depression, anxiety, impulse control disorders, or pathological gambling. IAD is compared to food addiction, in which patients overeat as a form of self-medication for depression, anxiety, etc., without actually being truly addicted to eating."

I read about a brand new treatment center was started in the US to treat IAD. "reStart Internet Addiction Recover Program" offers a 45-day treatment that's "designed specifically to help internet and video game addicts overcome their dependence on gaming, gambling, chatting, texting and other aspects of internet addiction." The center says that about 6-10% of all internet-users are actually dependent upon it. The center believes that the US is slow in its recognition and treatment of internet-related addictions and dangers. The center also claims that China and South Korea have designated internet addiction as their "number one public health danger." The treatment costs $14,500 per person and no insurance company will cover it (yet).

What do you think? Do you feel your internet/technology use is out of hand? Is IAD an addition or a compulsion? Can we prevent more people from developing IAD or is this our next potential health crisis? Join the conversation.

Thursday, September 3, 2009

Welcome, Susan!

We've had a lot going on here at WEGO Health headquarters these past few weeks, but I'd like to take a minute to introduce the newest addition to our team: Susan Mees.

Susan joins us from The Natural Dentist (another Boston-based start-up), where she spent many years engaging customers, answering questions, and spreading the word about the importance of oral health and natural oral care options.

Susan brings this experience and her passion for healthy living to WEGO Health as our newest Community Manager. She's helping us build communities, connect with Health Activists and find (and share!) high quality health information.

Any extra time she has is devoted to books, crafts and promoting her boyfriend's band, Pray for Mojo.

Please join me in welcoming Susan to WEGO Health! Visit her WEGO Health profile to add her as a friend, or leave a comment on her profile page.