Archive for January, 2011

January 28th, 2011

Recap: January HABC 3 Fortune Cookies

by Amanda
photo credit: maza34 on flickr

Our first month of 2011 is coming to a close! Back when January began, we shared our first Health Activist Blog Carnival (HABC) topic of the new year: write 3 fortunes to your health community. In the spirit of our theme “New Year New You: Setting Health Activism Goals,” this seemed like a fun way to look ahead and think positive. We received some great entries – let’s take a look!


In Kelly’s post “Three Fortune Cookies: What We Hope the Future Holds” she went all-out and created really cool animated cookies that, when you hover over them, reveal the fortunes inside. Her colorful cookies tell her RA community:

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January 26th, 2011

Best tweets from finish this tweet

by Amanda

A few days ago, we sent out a little Tweet prompt – the first of our “Finish This Tweet” project of 2011.  (Because not all prompts are the bloggy kind, right?)  We wanted to see the Health Activist Twitterverse take on their health in one word:

The answers from our Health Activists were both varied … and inspiring.  Here are some of our favorites:

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January 25th, 2011

Multiple Myeloma Community Survey – Share your thoughts!

by Susan

In our ongoing mission to empower Health Activists, WEGO Health is excited to announce a new upcoming educational program – “Multiple Myeloma & Your Bones.”

In preparation for our upcoming educational program and on-demand webinar, made possible by one of WEGO Health’s sponsors, we’re asking that active members of the online cancer community and cancer Health Activists take a moment to participate in our online multiple myeloma community survey.

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January 24th, 2011

January Poll Results: Your Top 3 Goals for 2011!

by Amanda

Earlier this month, we asked you to look ahead into 2011 and pick the top 3 goals you hope to accomplish in your health activism. Well, the results are in!

What are your top 3 Health Activist goals for 2011? (Click to enlarge)

The number one Health Activist goal for the new year is to: “Post more frequently (on your blog, in a forum or community, on Twitter, Facebook, etc.).” The number two goal is “Dedicate more time to reading & commenting on the work of others.” While number three was nearly a tie between “Grow your health community (increase readership, membership, followers, etc.)” and “Collaborate with other Health Activists on a project.” These are all awesome goals and ones that will really help 2011 be The Year of The Health Activist. Now that January’s coming to a close – let’s get started! In the spirit of goal-setting and optimism,  we’ve come up with a handful of ideas to help you to accomplish these goals.

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January 21st, 2011

Interviewing Health Activists: Mary Shomon from About.com’s Thyroid Disease

by Amanda

Mary (@ThyroidMary)

To round out January’s focus on Thyroid Awareness Month, we’re thrilled to have had the opportunity to speak with About.com’s Thyroid Disease Guide Mary Shomon about her personal experiences with thyroid disease and her advocacy work both online and off.  Diagnosed in 1995, Mary has been a passionate advocate for thyroid conditions and a Health Activist in every sense of the word. A wonderful and prolific advocate since the days of dial-up, Mary started as many Health Activists do – with diagnosis then self-education. Mary is drawn to correcting misinformation and helping others “fast-forward up the learning curve.” Dedicated to lessening the stigma related to thyroid conditions, she’s doing a lot to counteract incorrect notions about thyroid. In face, this past week Mary has begun to, quite literally, change the “face” of thyroid disease with her awareness campaign I Am The Face of Thyroid Disease with fellow thyroid activist, Katie Schwartz. Thanks, Mary, for taking the time to talk with us today – we’re so excited to learn more about your health activist story and raise awareness for thyroid in our community!

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January 17th, 2011

Finish This Tweet!

by Amanda
photo credit Victor Bezrukov on Flickr

Get your community involved! Finish this tweet (or Facebook status or both if you’d like):

My health in one word is: _____.

Which adjective fits best to describe your health?

Feel free to use this as a discussion in your community or as a jumping off point for a quick blog post today.

Do you think you can describe your health in one word? Would you make up a new word to describe your health? (One of my favorite things to do is create new words – especially mush-words or portmanteaus.)

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January 14th, 2011

Interviewing Health Activists: Katie Schwartz, Founder of Dear Thyroid™ Part 2

by Amanda

Here is Part Two of my interview with Katie Schwartz, founder of Dear Thyroid. (Click here to read Part One)

Katie (@dearthyroid)

Amanda: Dear Thyroid is a different kind of health community and it says so right in the first line of the About page. What made you decide to bring your crusade online?

Katie Schwartz: Being a writer, I have an ongoing love affair with words. I believe that each person (when they are ready) must tell their story in their own words. Our slogan is “Healing our thyroids one letter at a time”. We mean that literally and metaphorically. Write and submit as many letters as it takes. Join our conversations in comments, and on our chat boards.

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January 14th, 2011

Interviewing Health Activists: Katie Schwartz, Founder of Dear Thyroid™ Part 1

by Amanda

Katie (@dearthyroid)

In honor of January’s Thyroid Awareness Month, I had the awesome opportunity to interview Katie Schwartz, Health Activist mastermind behind the community Dear Thyroid™. Like her community, Katie is fiercely dedicated to being honest and real about life and thyroid conditions. Her responses to my questions are saturated with rich, fun language, likely due to her background as a comedy writer and fellow lover of words. In addition to being well-spoken, Katie takes a fresh approach to advocacy that is both light-hearted and content-centric. (Perhaps it’s no surprise why I’m such a fan!) Personally, I connected immediately with Dear Thyroid’s mission statement and their literary focus. It doesn’t take long to see why this community is special and why it has engaged so many. A self-proclaimed “pushy broad,” you can expect many more great things from Katie and her community in the future.

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January 12th, 2011

Tough Questions, Health Activist Answers: “What if my family doesn’t believe my pain?”

by Amanda

In our Community, a recent tough topic has sparked an enlightening conversation. The inspiration for this discussion is the idea of physical pain, a side effect and sometimes a symptom of many health conditions. What if your loved ones don’t believe your pain? What do you do when others are dismissive of your pain?

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January 10th, 2011

Vote Now! What are your top 3 Health Activist Goals of 2011?

by Amanda

Participate in our January poll! Going off our theme “New Year, New You: Setting Health Activism Goals” – we have come up with 9 great goals for Health Activists (and a space for you to write your own!). Which of these are most important to you in 2011? Which 3 top your list of 2011 Health Activist goals?

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