Archive for February, 2012

February 29th, 2012

#HAchat Recap: Finding “Dr.” Right

by Caitlin

As February comes to a close, we reflect on the ultimate quest, finding Mr. Dr. Right!  Finding the right doctor can make all the difference in your care, but how do you know he/she’s “THE ONE”??  Health Activists gave us tips for finding the right Dr. and maintaining a good relationship in this week’s #HAChat.

 

Know yourself, know what you want

You know what you’re looking for in Mr. Right, so why is it so different with Dr. Right?  While everyone’s care will be a little different, it’s still important to know what you expect out of your relationship with your doctor and to make this clear to them. This comes from knowing yourself and knowing what you need: as ShyDi47 said, ”U need 2 know yourself, ask questions also do some research on your dx so u r a step ahead of the Dr. Make yourself look smart.” Your doctor can’t read your mind, so communicating your needs and expectations is key to establishing a good relationship.   kimmieCollas says start off right,  ”on the first appointment, make it clear that you’re looking for someone to work WITH you, not dictate to you.” If you have doubts, or don’t know what you should expect, go to your community.  Many Health Activists discuss different healthcare providers within their communities.  kimmieCollas continued, ”decide what’s most important to YOU in a doc, then “interview” them to see if they might be a good fit.”

 

He’s just not that into you…

TiffanyAndLupus had it right: “You wouldn’t tolerate a lousy boy/girlfriend so DON’T let your doctor do it either. Take pride in your body & demand the best.”  Why would you ever put up with anything but the best care? Why put up with a doctor with great credentials if their attitude makes you feel worse for the wear after an appointment?  SickMomma said “I won’t stick with a dr w/lousy bedside manner. Communication is key 4 treating ongoing chronic illness, imo.” Then again, it all comes back to knowing the kind of support you need from your doctor: kimmieCollas shared, “I won’t deal with a rude doctor who treats me like an idiot, but they don’t necessarily have to be all “huggy” either.

So when is it time to say “enough” and find a new healthcare provider or seek a second opinion?

SickMomma T2: I struggle with knowing when to switch specialists. A sure sign 4 me is when they start losing interest in my symptoms/treatment

TiffanyAndLupus T2: When a doctor is rude; doesn’t follow diagnostic criteria/protocol; & doesn’t value my input as an informed patient I FIRE them!

Sometimes it’s just nice to get a fresh perspective, whether or not you intend to change healthcare providers: SickMomma told us, “Sometimes you need to visit drs outside local community to get a fresh viewpoint. Drs are often leery of contradicting locals.” Remember, you are your best advocate. TiffanyAndLupus: “Key is to not let MD credentials intimidate you. They may have a degree, but they don’t have the experience! We do!”

 

Getting the Best Care

Getting the best care isn’t just about finding the best doctor. It’s about being an active participant in your care. pamressler shared that, “”Best” care is individual to the person, a HCP needs to understand pts beliefs and values for care that is appropriate and valued.

The word “relationship” implies that you are also actively engaging with your health care team, not just letting them call the shots.  TiffanyAndLupusIt wasn’t until I became chronically ill that I became “hands-on” with my health. It took time but I’m glad I did!“  Your doctor may provide you with advice and tools, but how you handle your care is ultimately your decision (kimmieCollas).  So speak up, communicate, don’t be afraid to ask questions, and remember:

TiffanyAndLupus Whether you pay for your healthcare or not; it’s called health CARE for a reason. You’re to be cared for not “tolerated”.

March is Health Activists and Healthcare Professionals Month here at WEGO Health and we ant to bring some healthcare professionals into the conversation.  Do you know any HCP on twitter or active online? Invite them to next week’s chat!

 

 

February 27th, 2012

Social Tone: Health Networks vs. Standard Communities

by Susan

One of the things I love best about working at WEGO Health is hearing directly from Health Activists about their motivations for going – and staying – online; essentially, how the internet and social media has changed the lives of both patients and caregivers today.  Generally, we hear that people go online looking for support and information around their diagnosis, or that of a loved one, and that for the most part, they find both support and information within that online community and that the majority of experiences within the online community are positive.  As a Health Activist yourself, I’m sure you know that this is a major factor in wanting to stay active and engaged within the online community.

 

But let’s get real, it’s not all rainbows and sunshine; sometimes you have community members who are negative, disruptive, or even downright mean.

 

The Pew Internet & American Life Project (if you’re not familiar with Pew, you should definitely check them out – great resource for internet-related research) recently released a new study on ‘The tone of life on social networking sites’ and it got me thinking about what Health Activists see every day as well as what we see in our own community here at WEGO Health.  The top line findings from Pew’s report were in line with what my gut tells me about health communities online (“social networking sites” or SNS):

 

  • 85% of SNS-using adults say that their experience on the sites is that people are mostly kind
  • 49% of SNS-using adults said that they have seen mean or cruel behavior displayed by others at least occasionally
  • 13% of SNS-using adults say yes to “has someone been mean or cruel to you personally”

 

But, what I found really interesting was some of the information that came from downloading the full text of both questions and answers related to this study.  Pew did a great job in probing participants about what actually happens within the community when there is negative, mean, or cruel behavior.  A few more data points for you:

 

 

Frequently Sometimes Once in awhile Never Don’t Know Refuse
When people on social networking sites are being mean or offensive, how often, if ever, do others… defend the person or group who is being harassed or insulted? 22% 32% 23% 15% 7% 1%
When people on social networking sites are being mean or offensive, how often, if ever, do others… tell the person to stop? 21% 27% 24% 22% 6% 1%
When people on social networking sites are being mean or offensive, how often, if ever, do others… join in the mean or offensive behavior? 10% 26% 31% 28% 5% 0%
When people on social networking sites are being mean or offensive, how often, if ever, do others… just ignore the behavior? 45% 28% 13% 8% 6% 1%

 

Based on these Pew findings, there is a fair amount of negative or mean behavior that goes unaddressed by the community at large.  Having had my own experiences within social networks, I don’t find this hard to believe but when I think about health communities specifically, I’m less sure.  Based on what I’ve seen of both Health Activists and community members, health networks are “safer” than the standard social network and most members are welcoming and accepting, but also that community members are more likely to call others out when they’re acting inappropriately.

 

Pew focused on all social networking sites but it would be interesting to see how health sites compare.

 

What has your experience been within your own communities?


 

February 27th, 2012

This Week’s #HAchat: Matchmaking with Your Healthcare Team

by Amanda
Photo credit jfcherry on Flickr

This month’s final #HAchat will wrap up our Matchmaking theme and act as a segue into our theme for March: Health Activists and Healthcare Professionals. Let’s talk about the relationships we have with our healthcare teams, PCPs, and how that plays in to our Health Activism.

 

Do you discuss your blog with your doctor? Does your doctor make recommendations that you share with your community? How do you know when you need to seek second opinions and what advice do you have for starting conversations about improving your care?

 

Join us tomorrow at 3pm ET on Twitter to discuss these topics and more! And – get ready for March – it’s going to be a great opportunity to see which HC pros are already using social media and how you think that more could get involved. http://tweetchat.com/room/HAchat


Why not share a tweet with your community letting them know about tomorrow’s chat? Here’s one to copy/paste:

This week’s Health Activist Tweetchat is on Matchmaking & Your Healthcare Team. Join #HAchat Tues at 3pm ET to discuss!



 

February 24th, 2012

Upcoming Health Activist Panel: Sickle Cell Disease

by Caitlin

In our ongoing efforts to empower Health Activists, we’ll be holding a Panel for active members of the online Sickle Cell Disease community. We’re hoping to bring together patients and caregivers to discuss important conversations that are happening in the community as well as identify unmet needs.

 

A few things to know about our session:

-       The panel will be virtual so members can join from anywhere in the country as long as they can be on the phone and online at the same time.

-       The session will last one hour.

-       Participants will get the chance to have a candid conversation about the needs of their online community and to connect with others who share their interests.

-       All participants will receive $25 for their participation

 

Do you have Sickle Cell Disease or care for someone who does?

Join us for this Health Activist Panel: Sickle Cell Disease

http://info.wegohealth.com/Sicklecelldisease

 

 

February 23rd, 2012

Meet the HAAwards Finalists: Christie Germans

by Amanda

I’d like to introduce you to Hilarious Health Activist Finalist and MS Health Activist – Christie Germans! Christie blogs over at The Lesion Journals and brings humor along with her glimpse into life with Multiple Sclerosis. She balances lighter content with educational posts and resources for those in her community. It’s clear that she enlightens her followers simultaneously through her own courage and sense of humor (check out her video on Staying Positive With MS – hint: Christie’s answer is laughter). In true Health Activist spirit, Christie brings honesty and dedication to “explor[ing] what it means to live with this neurological disease” right alongside some really helpful factual information (check out the comprehensive navigation bar on her blog). We’ve enjoyed getting to know Christie and hope you will too. Now, let’s hear more about her in her own words…

 

How/why did you become a Health Activist? Tell us your Health Activist story!

I really became a Health Activist by accident. It was not my intention. Once I developed my MS symptoms, I began writing about it and I have found writing about it to be very cathartic. Turns out, it helps others too. The rest is history. I joined a variety of support groups, including the fabulous WEGO Health team, and participate in different types of projects including blog radio, magazine work and panels.

 

What are your goals for 2012? Anything you’re really looking forward to?

My goals for 2012 include the continuation of journaling my experiences on my blog and to start adventuring with video and photography as another form of expression and another way to communicate what living with MS is like.

 

Be sure to follow Christie’s work (if you don’t already) and “meet” her through the web on The Lesion Journals, her Twitter, and her video on WEGOHealth.tv.

 

 

February 22nd, 2012

#HAchat Recap: Matchmaker, matchmaker, make me a match!

by Caitlin

Image credit violetknows on Flickr

February’s Health Activist Matchmaking Month is coming to a close and this week’s #HAChat focused on matchmaking within your online community.  Matchmaking is a great way to build up your network, help people help each other, and take some of the pressure off of you as a Health Activist and community leader. Check out these tips and tricks for matchmaking and why it’s so important.

 

The key to being a good matchmaker is working within your online community.  Members must feel welcome and feel like they are respected and supported by other community members. A great online community is filled with:

 

TiffanyAndLupus: honesty, mutual health/illness journey, compassion

 

NateOsit: a lot of strong personalities and an open and collaborative feel

 

KatherineS84: Supportive people, open minds, no judgment and honesty. The more you share, the more others will open up

 

Introducing people to each other within in your community is not only a great way to build your network but it’s also a way to take some of the burden off yourself as a community leader.  Matchmaking is a way to share responsibility as well as make members of your community feel included.  TiffanyAndLupus introduces lupies to each other all the time, especially if they have similar health questions, issues or concerns.  Giving your members roles within your community is a great way to avoid burnout, which can be a real problem for patient advocates.

 

TiffanyAndLupus: Advocacy burnout is another sneaky devil & I haven’t quite yet figured out how to escape her clutches

 

Jason31480: Giving yourself a day(s) off is important so you dont get burned out also – and important to your OWN health …. #HAchat

 

Bringing others into your community to share the work is also a great way to keep your community running smoothly.  And while it’s great to ask members to take on roles within your community, if you have created an open and supportive environment, you might find, as @TiffanyAndLupus did, that members will watch over each other and speak up for themselves.

 

In terms of introducing community members to each other, twitter is a great way to do this.

 

TiffanyAndLupus: Using twitter hashtags that pertain to our content can help connect us to those who are looking for community. #hachat.

 

NateOsit: T4 On Twitter, you can make a list of people you interact w/ frequently, and chat w/ folks regularly #HAchat

 

Jason31480: Yes twitter hashtags can really go a long way. I try to use the #CDSN tag when appropriate – also have a list of members on twitter #HAChat

 

You can also use an #ff or add a cc with a group of people that have something in common.  Other ways to connect members of your community include setting up a mentor program. As Jason21480 shared, “Setting up a mentor program can be a great tool as well – matching members up together who have similar interests, symptoms, etc.”

 

#HA Chatters also had some great tips on how to make your daily online interactions better:

 

Jason3184: – pose a daily question for your members – it can be serious or fun. Such as “You know you have IBD when …” #HAChat

 

TiffanyAndLupus: Remember to respect your own health or you will not be able to help anyone! Take care of your needs so you can help others. #hachat

 

ShyDi47: We all need 2 take care of one another, @ work 2 gether @ come 2 gether as a Community that is vital either online or offline. #Hachat

 

TiffanyAndLupus: Humor is your friend! Use it to help lighten the day; never underestimate the power it has to travel online & help someone else. #hachat

 

Have any other tips on how to make your online interactions better? Think some of your community members would hit it off? Connect them today and share new ideas for connecting people here: editorial@wegohealth.com!

 

Tune in next week for the kickoff of March’s theme: Health Activists & Healthcare Professionals.

 

 

 

February 21st, 2012

Today’s #HAchat: Matchmaking In Your Health Community

by Amanda

Image Credit: dalboz17 on Flickr

Health Activists wear a lot of proverbial hats – today let’s look at the host/hostess hat.

If you think of your blog or site as a the location of a party you’re throwing, and all of your readers or members as guests – you’re in the host/hostess seat. This means you have a few different jobs to juggle at once: preparing the environment (hide your valuables – or display something you’re proud of), welcoming guests as they arrive, making sure you introduce people to each other, encouraging people to make themselves comfortable, offering some refreshments (in the form of media entertainment?), and generally ensuring that everyone has a really great time.

 

Today let’s discuss how to go about doing that. How do you host your online community’s health party? How do you go about making connections among your guests and encouraging new relationships amongst attendees?

 

Join us at 3pm ET today for our #HAchat on Matchmaking in Your Health Community.

We’ll chat about:

- What makes an awesome online community.

- How Health Activists (bloggers, Twitterers, Facebookers, etc) can turn their community into an enjoyable party.

- How to play Matchmaker with those you meet online.

- Challenges you face as a “host/hostess” and health community manager.

- Tips we can all use to improve our online interaction.

- And more!

 

Here’s a link to the Chat room: http://tweetchat.com/room/HAchat – looking forward to chatting with you!

 

 

February 16th, 2012

Meet the HAAwards Finalists: Wendy Holcombe

by Amanda

I’d like to introduce you to TMI Award Finalist, and Health Activist – Wendy Holcombe! Wendy is a Chronic Illness Health Activist who blogs over at Picnic With Ants. Nominated for her honest approach to blogging, Wendy chronicles all her “ants” (chronic illnesses) with a unique voice that really resonates with her readers. She openly commits to telling “some of the most embarrassing and scary moments” that come into her life and is determined to “break down the 4th wall.” Her approach helps make invisible illness not-so-invisible. Her readers (and nominators in particular) love her blog because she describes things that they, too, experience but may be too shy to say it. Her artistic flair has also been known to inspire (check out her art here and her Create To Heal blog here). Wendy’s candid approach (and humor) inspires many and I’m so happy to have learned of her blog through the HAAwards. Now – let’s learn more about Wendy in her own words…

 

How/why did you become a Health Activist?  Tell us your Health Activist story!


After being misdiagnosed with different disorders/illnesses I realized I needed to be a better health advocate for myself.  I couldn’t put all my faith in the doctors to figure out what is going on with my body.  No one knows my body better than me.
Becoming a better health advocate for myself led to my wanting to help others learn to speak for themselves.  To know more about their illnesses.  I reached out.  I started a support group, for a disorder I later found out I don’t have, it was very successful.  I may not be involved any longer, but I’m happy to say the group is still going strong approximately 9 years since I founded it.  I also made some life long friends from my time with this group.  One thing I really took away from this group, most people feel alone in their struggles.  It was then that I decided I would always be available to anyone who needs to feel like they aren’t quite so alone.


I have a number of chronic illnesses.  With each new diagnosis I would dive in trying to find out as much information as possible.  Again, meeting new people who felt they were so alone.

I was diagnosed with Meniere’s disease years ago.  Meniere’s disease is a vestibular disorder causing fluctuating tinnitus, aural fullness, sudden and severe attacks of vertigo, and fluctuating hearing loss often leading to complete hearing loss.  Meniere’s is progressive, some progress more than others.  I’m in the advanced stage. In late 2009 Meniere’s took over my life.  Before then I only had it in my right ear, in 2009 it started to effect my left ear.  Early in 2010 I started a new blog, Picnic with Ants, detailing my journey living with chronic illnesses, and determined to live the most productive, healthy, and happy life possible.
Since that time, my blog has mostly been about living with Meniere’s disease.  I talk about the good, the bad, and the very ugly.  I also talk about my other illnesses, but I will admit for the past few years Meniere’s has ruled my life.

My blog is very honest, and forthcoming.  I’ve found that people do not understand just what goes on with most chronic illnesses.  This causes many people to feel alone, even though they’ve met others who have the same illness.  We do not talk about what goes on behind closed doors.  How our illnesses destroy many aspects of our lives, and how we can deal with that.  I’m trying to open those doors and help people realize it’s alright to talk about the nitty gritty ugly details.  If it helps one person feel less alone, it has been worth all the embarrassing stories I tell.  I’ve also found that others who read these post who do not have the certain illness, like Meniere’s, or may know someone with the illness, can finally understand what we go through.  After writing a very detailed post about a vertigo attack, one reader stated, “This is the most terrifying thing I’ve ever read.”  This reader has many issues of her own, when I read this comment, I cried.  I felt validated.  This one person understands now, I hope other’s do, but just knowing one person understands means I will continue to write about it, until I can reach another and another….

To summarize, there are 3 main reasons I’m a health activist, to help people realize they are not alone, to help people understand they must be an advocate for themselves, and to help people understand more about the details behind certain illnesses.  


What are your goals for 2012? Anything you’re really looking forward to?

Personally, I’m looking forward to having less vertigo.  I had surgery on my left ear in December, I had the same surgery on my right ear in 2010.  This surgery should reduce the vertigo by 70 – 90%.  After being mostly bed bound for nearly 6 months in 2011, because of daily vertigo, I am looking forward to doing things.  I want to continue my promise that I will never take a good day for granted.  Everyday I feel well enough to do things I will take advantage of every moment.  

My goals for being a better Health Activist in 2012:


I want to reach more people, help them learn more about certain illnesses, support those who feel alone, and (perhaps most importantly) help people accept their chronic illness and feel more positive about their future.  This last point was a very hard one for me to come to terms with, I hope I can help others do the same.  Including encouraging them to seek professional help to deal with the loss of independence.

I also want to give back to the caregivers.  To acknowledge them and hear their stories, how we can help them and let them know how very important they are.

Due to Meniere’s I’ve lost the majority of my hearing.  I plan to be more active in the deaf community, learn ASL (American Sign Language) and help others who are losing their hearing later in life.  

If my health permits I hope to attend conferences for health activist, and one specific conference for the deaf and hard of hearing.

As I often say on my blog, My life may not be what I expected, so I will change my expectations.  One day at a time.  For example:

When I was confined to my bed I tried hard to be as productive as possible, through the vertigo attacks and the migraines.  I started a second blog called Create to Heal, all about how creating can help you feel better.  Accomplishing just a small thing, can make the day seem worth while.  I’d like to further this venture.  Trying to create something every day, even if I didn’t complete it in one day, it made me feel more productive than I have in a very long time.

 

Be sure to follow Wendy’s work (if you don’t already) and “meet” her through the web on Picnic With Ants her TMI-nominated blog, her art healing blog Create to Heal, on Facebook, and Twitter.

 

February 16th, 2012

Talking to Strangers: A Health Activist Perspective

by Amanda

Today we have an important post on a little-discussed topic in our Health Activist community – but one that bears discussing: the darker side of having an online presence – creeps. By putting ourselves out there, online, we open ourselves (and our lives) up to those we seek to connect with. It’s one of the most integral parts of being a Health Activist – providing that genuine face-to-the-name and helps raise awareness and creates relationships between members of your particular patient community. However, just as in real life – and maybe even more so – creeps exist online. People who want to derail the conversation by being inappropriate, commenting on you physically, or simply trolling in an uncomfortable way. Have you run into instances where you felt harassed? We know that most Health Activists are women – some of whom are quite lovely – and unfortunately many people feel it is their place to comment on that. It can be incredibly frustrating and sometimes, down right scary. Today’s post is written by IBD Health Activist Sara Ringer, of Inflamed and Untamed, who has experienced this (especially due to her vlogging). I hope you enjoy the post and think about bringing this conversation up in your health communities. Sara offers some great tips you can share. –Amanda

 

 

Talking to Strangers: A Health Activist Perspective

by Sara Ringer

 

I was always taught not to talk to strangers and here I am talking to thousands of them!

Being a Health Activist means putting yourself out there.  We open up about our weaknesses, strengths, things that make us LOL, and all sorts of things that make us vulnerable with the goal of helping others who struggle with our condition.  Putting yourself out there is a great thing, you are helping many people by sharing your experiences.  Your readers can see themselves in the things you share and in turn they feel a kind of bond and closeness to you.  But how close it too close?

 

I’ve received a lot of wonderful feedback from people who follow my blog and YouTube channel.  Hearing those things are the things that keep me doing what I do.  But I also receive a lot of feedback that is down right creepy and sometimes scary.  A lot of this has come from video blogging.  Not only are you sharing stories and being vulnerable, but you are doing so in front of a camera.  This adds a whole new relationship between you and your community.  They see you right there in front of them, talking to them.  They know what your living room looks like, they know what YOU look like, and after watching your videos they start to feel like they know you too. I imagine this is what celebrities deal with but on a much smaller scale.  People become obsessed with people they don’t even know.

 

Sharing my thoughts and experiences through blogging and video blogging has been almost nothing but a good thing. It has widened my audience and allows me to get things out there in a much more personal way.  But I have also had guys who have told me they love me.  I have guys who follow me on every one of my social networking sites and never fail to throw in a creepy comment about how much they adore me.  I have had random guys who have found me on YouTube write very vulgar things or followers who ask me for my phone number.  The list goes on…

 

So what do you do to protect yourself?


  • Emily from chroniccurve.tumblr.com writes “ I make a point not to create online relationships. By that I mean skype, personal friendships, exchanging addresses or numbers, that type of contact. Why? Because there is no way to know who is truly sitting on the other side of the screen.” She makes a very good point.  You want to be there as much as you can for your audience but you have to know where to draw the line.

 

  • If you encourage your readers to email you, set up a different email account. I learned the hard way to not share my personal email address with my readers.  Recently a very mentally unstable and unhappy person came across my blog and didn’t like what I had to say.  He started emailing me hateful messages numerous times a day and would change his email address so he couldn’t be blocked.  I wasn’t the only one in the community he was threatening but I learned quickly to not share my personal email address.

 

  • Use caution: You might feel after talking to someone for awhile that you know the person and that they can be trusted, thus offering up information about yourself you normally wouldn’t.  This brings us back to “there is no way to know who is truly sitting on the other end of the screen.”

 

  • Know when not to respond. I try to respond to everyone but there are certain things I do not respond to. If it is inappropriate or creepy I usually pass it up.

 

  • Keep in mind the internet is full of all sorts of people. Not everyone is mentally stable, “creepers” do exist, and not everyone can be trusted.

 

Overall you just have to use your best judgement. There have been times when I’ve offered up my phone number or sent out a care package.  I have created some of my best friendships through being a Health Activist. You just have to be careful.   As Health Activists we are passionate about what we do and we want to create a community that is open and safe for everyone. You don’t have to talk on the phone, skype, or send things via snail mail to create meaningful relationships with your audience. With facebook pages, twitter, message boards, and email there are plenty of ways to create relationships with people and offer support in a safe way.

 

 

February 15th, 2012

#HAchat Recap: Not-so-secret Admirers: Health Activists Reveal their Online Crushes

by Caitlin

Last week we talked about the ins and outs of relationships and your health.  Once the relationship starts to blossom, it can take on many different forms.   Friends, boyfriends/girlfriends, caregivers, but all these relationships start the same way…as a crush.  It could be romantic crush (I “like-like” you) or a friend crush (“You’re so cool! Please be my friend”), or even get a little creepy (online stalking! Uh-oh!) but it starts with a crush nonetheless.

So how does this work online?  Do you ever read someone’s blog and just think, “OMG I wish we were friends in real life?”?  Do you get a rush from a new Facebook poke? Do you stalk your crushes on their various social platforms? We know you do, we all do.  Yesterday’s #HAchat we talked about who you’re crushin’ on in the virtual world and what about them you’re into.

 

It turns out that the criteria for internet crushes is pretty similar to real-life ones.  People admire qualities in others that would draw you to them in person, someone who is open and who makes you feel comfortable, someone who is smart and passionate about their work (like all of our Health Activists!) , someone who inspires others and can make you laugh during the toughest time.

 

Lizzmariposa: confidence….always, always, always…inspiring confidence in others, or their children, that they can soar above the clouds…#hachat

Nateosit; T1.2 I love people who are passionate about what they do, who are inclusive, understanding, and help out others #HAchat

Betizuka: T2. I admire their dedication, their courage, their sense of humor, their charisma. #hachat

 

So what makes an internet crush different (other than the fact that you don’t know the person)? Crushing on someone for their internet skills (@sara_ringer) or for the design of their blog, or for promptly responding to emails, tweets, and Facebook posts. It’s a lot of work to stay connected in both the virtual and non-virtual world, and reaching out to people personally is definitely a crush worthy attribute. It shows your followers that you care about them and you want to help each person that you can. Tech skills will get you noticed too, as will your dedication to regularly posting new content.

 

Sara_Ringer: I envy tech savvy people. I see a blog I like and swoon over their skills.#Hachat

Tmana: T1.2 For some, the ability to post daily — it takes me a lot longer to craft a great blog post than it seems to take my “crushes” #hachat

Tmana: T1.2 For others, their access to information (and review devices) before it is common knowledge (or available to purchase) #hachat

 

Internet crushes inspire slightly different feelings than real-life ones though, especially in the health sphere.  Health Activists inspire, give advice, and teach.

Sara_Ringer: It’s a feeling of learning from them. I think to myself “i wish i thought of that” when I see something I like/admire. #HAchat

Lizzmariposa Sometimes, I am more inspired by the folks who just quietly do the things they need to get done, without fanfare… Inner strength #hachat

Lizzmariposa: It’s a feeling of learning from them.  I think to myself “I wish I thought of that” when I see something I like/admire.

Susanmees: I crush on people who seem to just be really ‘good’ – I see people facing extreme challenges and offering me kind words. Amazing. #hachat

 

One of the best parts of crushing on someone is that those feelings make us want to better ourselves. lizzmariposa: “When I am around these folks, I am reminded of… how much potential there is in me, and I forget for a moment I have X illness.”  Think about someone you have a crush on in the real world. You might pick out a cute outfit on a day that you’re going to see them, make sure you do your hair, or just do little things you think they might notice.  It’s just as important to put your best self forward online, and yesterday’s chat provided great tips for making yourself more crush-worthy.  It’s important to bring non-health related stuff into your writing to round out your “voice” and make you more approachable. Similarly, if you can, reaching out to your followers by answering emails, responding to comments, and re-tweeting or tweeting at followers builds your personal network. Sharing those “AHA” and “UGH” moments (@lizzmariposa), as well as your successes and failures, personal bests, and helping to connect others. Vlogs are another great way to make a personal connection with your followers.   Give people something to laugh about. Share. Be open.  And finally, in case you were wondering if anyone’s crushing on you:

Sara_Ringer: Just a reminder to all of us here that you do all these great things. *crushes on you* HAchat