May is Setting the Record Straight month here at WEGO Health and we’re excited to hear from YOU about the myths & misconceptions that irk you most. We recently reached out to some Health Activists who participate in the Lyme Disease community and asked them to share their top myths & misconceptions about Lyme Disease.
When you’re getting to know someone for the first time, there are certain things about yourself that you want them to know. You may not even realize that you’re doing it, but there are certain key pieces of information that whether consciously or subconsciously, you need them to know. Maybe it’s your profession, or where you’re from, or the names of your children. Maybe it’s that you’re a dancer or a world traveler. No matter what these things are, they are things that if someone didn’t know about you, they wouldn’t fully understand what makes you, you. They’re the essence of who you are. There are things that you do, that you believe, that you embody, that make you who you are. So, what happens when you’re sick? When your diagnosis becomes a very integral part of your reality? When you can no longer do all of the things that made you who you are? Does your identity change? Do you feel differently about yourself? Do others see you differently? Your condition may not be something you’d tell someone about at a party, but it’s still a part of who you are, and only you can decide how it will or will not define you. In this week’s Health Activist Chat, we discussed the crossover between identity and diagnosis.
In honor of National Mental Health Awareness Month, WEGO Health conducted a Health Activist Roundtable with several members of the online Depression community – Tiffany, Corey, Dani, Will, and Patrick. They shared some very honest and important feedback based on their experiences within the community and we wanted to make sure you had a chance to hear from them as well:
In honor of Celiac Disease Awareness Month, WEGO Health recently got in touch with Celiac Disease and Diabetes Health Activist Bridget who blogs over at Bridget Writes. As someone who focuses on both diabetes and gluten-free, Bridget had some great things to share with us about Celiac Disease.
To wrap-up our month of identifying, confronting, and correcting myths – today’s chat will center around the idea of identity. Last week we got literal: sharing myths and truths about ourselves as patients, e-patients, and Health Activists. Let’s continue with that idea – but get a bit more philosophical.
WEGO Health recently held a Health Activist Roundtable discussion focused on the bipolar disorder community and had the chance to discuss bipolar disorder with 3 awesome Bipolar Disorder Health Activists – Carlton, Cimmerian Ink, and Julie. They shared some very honest and important feedback based on their experiences within the community and we wanted to make sure you had a chance to hear from them as well:
Image credit: ejbsf on Flickr
In honor of our Myth Mugshots Photo contest, in this week’s #HAChat, we encouraged Health Activists to put it all out there. No pomp and frills, just stating the myths and then debunking them with truths that we, as empowered patients in the online community, are all too aware of. It is your job as Health Activists to wear these truths on your sleeves, to educate others, to raise awareness. Here is the list of myths Health Activists are debunking and the truths they wear proudly.
Did you know that last week marked 2012’s Food Allergy Awareness Week? To honor the week, and to help Food Allergy Health Activists to raise awareness, WEGO Health held a Health Activist Roundtable with active members of the community. We learned a ton from these dedicated Health Activists and know you will too.
We often discuss the idea of “becoming a Health Activist” and how patients (and caregivers) go from empowered to advocating. That journey, itself, is unique to the individual but still has things in common across the board — and noting and drawing upon those commonalities is a great way to perhaps inspire others to become Health Activists, too. One of the ideas we’ve mentioned frequently is the concept of a Health Activist Mentorship program – where a more seasoned Health Activist would offer ideas, advise, and feedback to inspire someone who’s just starting off into the world of online health leadership. It’s a really great idea and, when I came across Julianna’s feature on her blog What The Jules called the “Blogger in Residency Program” – it was a true light bulb moment. I couldn’t help but see it as a real incarnation of that Mentorship. I contacted Jules to hear more about the program because I think it could be something that other Health Activists can bring back to their blogs and try as well. Here’s what we discussed:
In honor of our Myth Mugshot contest going on this week over on our Facebook page – we’re dedicating this week’s Health Activist Tweetchat to talking about myths… and truths.
Similar to our first chat of the month – which focused on defining a “myth,” discussing where myths comes from, and some of the most common myths we’ve heard about conditions – we’re going to step back and look at some bigger picture items. Let’s discuss myths and misconceptions about healthcare.