Archive for October, 2012

October 30th, 2012

Today’s #HAchat Topic: Facing Judgement as a Patient

by Amanda

Image credit: doug88888 on Flickr

When building relationships and coexisting with fellow humans in life – there is conflict, disagreement, and a divide between how you perceive yourself and how others perceive you. In this week’s Health Activist Tweetchat let’s focus on the latter.

 

We often find ourselves having to speak out about what is true about ourselves, our health, and the communities we advocate for. This is because there is a lack of awareness, understanding, or compassion amongst the general public. Have you ever been told that “At least you don’t have [___ condition]” or that “You’re lucky you’ve got a good disease”? Have you ever been judged for seeking certain treatments or advocating for a certain cause? What about facing stigma for misperceived causes for your symptoms? Have you ever been blamed or felt another condition was blamed because of incorrect information or myths?

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October 24th, 2012

Guest Post: Why Me: Disease vs. Recovery

by Amanda

Image Credit: Michael of Scott on Flickr

When tough stuff arises in life – we are inclined to analyze it and try to make sense of the chaos. Almost instinctively, we wonder, “why is this happening to me?” And, often, the answer isn’t what we want it to be. But that doesn’t mean we can’t rewrite the answer over time. It takes a lot of healing, rewiring, and acceptance. This moving post by Courtney explains how she rewrote aspects to her story – just by rephrasing her experiences and reinterpreting events. Just by trying to look at things in a different way – we can change the way we see ourselves and the course of our lives. It’s not easy – and it takes time. But it’s possible. Thanks for sharing this with us, Courtney. –Amanda

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October 22nd, 2012

This week’s #HAchat panel: Planning for End of Life

by Amanda

 

Image credit: Klearchos Kapoutsis on Flickr

We have another Tough Stuff topic to discuss this week – that is relevant to both the patient community and individuals with significant online footprints. We’ll be discussing planning for end of life.

 

Now, for the most part – we don’t discuss EOL or death. We’re more focused on living well and making the most of each day. And that’s ok. Life is complicated enough with balancing life as a patient, friend, family member, parent, employee, and online health leader. You’ve got a lot going on – and stopping to think about the big “what ifs” can be scary and even counterproductive at times.

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October 19th, 2012

Guest Post: My Beautiful Career

by Amanda

In this post, Health Activist Jane Waterman chronicles her experiences with the depths of depression and living with invisible illness while pursuing ambitious career dreams. Her struggles are difficult to read but relatable to those who have lived with unresolved symptoms and painful side-effects.  Though her journey was not easy, it is a testament to the process of healing and the work that goes into maintaining hope and finding solace. Thanks Jane, for bravely sharing your story with us. –Amanda

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October 19th, 2012

Join National Health Blog Post Month 2012

by Amanda

It’s that time again: the last burst of advocacy before we start a whole new year of Health Activism. That’s why we are doing National Health Blog Post Month (#NHBPM) this November.  We love to encourage the health bloggers among  us because, while a lot of people have blogs – it’s pretty special that you dedicate yours to raising awareness and helping others.

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October 18th, 2012

Guest Post: On Politics, Religion, & Advocacy

by Amanda

We have an interesting post today that is perfectly timed in light of all the political debate coverage of the past few weeks. Politics and religion – two topics that definitely fall under the Tough Stuff Umbrella.  We would like to thank Sara for bringing this topic to the forefront and sharing why she does what she does as a Health Activist.  It’s a great reminder that we all have our own backstories, our own experiences, and our own beliefs that inform our lives and the decisions we make. They are as intricate and inexplicable as anything – and yet, so deeply personal and thus: controversial.  Sara’s post reminds us that we can all be different and have our own views and still aim at the same awesome goals of advocating and helping others. –Amanda

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October 16th, 2012

Guest Post: Thinking and Talking About Death

by Amanda

This post explores a taboo subject of death. Through Ms Rants’ calm, thought-out perspective – thinking about death becomes less scary, less forbidden and feels “okay.” As a part of the human experience, death is a constant. In her post we see why discussions of death have a place in our world – not only in our families but in our health communities. We raise awareness, break down barriers, and expose what’s been hidden when it comes to our lives – why not think of death in the same way? Thanks for musing with us, Ms. Rants! –Amanda

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October 15th, 2012

#HAchat: Confronting In-Community Drama

by Amanda

For this week’s chat, let’s delve into different kinds of “tough stuff” that relates directly to participating in an online community: confrontation, conflict, and drama.

 

Image Credit: Thierrry on Flickr

The internet veils us. Safely behind our computer screens, we feel freer to express ourselves. We have the option to be anonymous and test the waters before we commit ourselves to it. Anonymity, itself, is important – especially to the online health community – because it allows the crucial first step of questioning, searching, and testing the waters to happen without interfering with our personal or professional lives. Disclosure is left up to us. We won’t be judged because we, as people, aren’t necessarily tied to what we say. We can decide what to share and with whom – all without the sort of permanence that comes with putting our names or faces to it. We are free to lurk and engage how we want to, whenever we want to. Seemingly without consequence.

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October 15th, 2012

WHPC: Marla Murasko at Bloggy Conference

by Amanda

As part of our WEGO Health Press Corps, we sent special needs advocate Marla Murasko to the 2012 Bloggy Conference. In this guest post she shares what she learned at the conference and how it will inform her Health Activism. –Amanda

 

Own Your Dream! Build Your Brand @ #BloggingCon

by Marla Murasko, Special and Determined

What an amazing experience I had at Bloggy Conference, thanks to my sponsor WEGO Health.  What was Bloggy Conference?  A fabulous opportunity to learn how to build your brand and enhance your blog through social media, meet some amazing woman and make meaningful connections.

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October 12th, 2012

Guest Post: Making it Stop by Making it Through

by Amanda

This is a beautiful post on the immensely difficult experience of dealing with depression amidst an autoimmune disease. Karen’s prose makes you feel like you’re beside her in the doctor’s office just wishing, willing the pain and anguish away . But though she struggles, her story is one of triumph and perseverance. Bringing awareness to the mind/body connection and how important it is to find the help that you need, I think you’ll be moved by this piece and should definitely share it with your community. Thank you so much for writing it and sharing it with us, Karen. –Amanda

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