The WEGO Health team had the pleasure of working with Susan in our efforts to raise awareness for lung cancer. We were so grateful to have known her and so admired the passionate, articulate voice that she brought to the online community.
Susan was a Health Activist in the truest sense. She was dedicated to helping others by sharing her own experience, and was a huge advocate of the power of the online community to provide much needed support to lung cancer patients and caregivers. She was an active member of the LUNGevity community and a champion of their mission and support groups. Her daughter, Alison, has set up a donation page to honor Susan’s memory and to continue to provide support to an organization that was so dear to Susan’s heart: http://events.lungevity.org/site/TR/Events/General?pg=fund&fr_id=1030&pxfid=32723
More than anything, Susan inspired hope in others. Through her writing, her voice, and her kind heart, she encouraged others to open up, share their struggles, and find hope in each other. This excerpt, taken from her blog, Lung Cancer Lessons, speaks to Susan’s love of the online community and the message she sought to share with others:
Then there was still the issue of Hope. My sisters made me aware of LUNGevity Foundation and their LCSC. I found other lung cancer survivors and caregivers there, online, who understood what hopelessness felt like. Yet they now seemed to have Hope. I was a bit reluctant at first, but it seemed to be working for these people. They seemed to be genuine and I soon made friends. I kept flexing that Hope muscle. It was pretty weak at first. I then began to feel better. My mind and emotions were getting stronger just as my physical muscles had done. I have grown and become stronger in so many ways. I did not do it alone. I did not do it in one day. My Hope muscle is helping me push through each day, through each decision. I can experience joy and happiness in my life with cancer. There is still work to be done, but now I feel I have the strength to do it. The strength to keep trying and I have the power of Hope to help me do it.
It was an invaluable experience to be able to work with Susan. To see her dedication to raising awareness and telling her story despite many challenges was not only inspiring, but also an amazing reminder to how truly important patient advocates are. We wish we knew her for longer – but we are thankful that her voice will live on at WEGO Health and LUNGevity. Our hearts go out to her family and those closest to her. Rest peacefully, Susan – you will be missed.
To read Susan’s blog, click here.
To watch videos featuring Susan, click here.