Blog

About the WEGO Health Blog

Welcome to the WEGO Health blog! Here you’ll find a collection of posts with resources, tips, activities, and ideas to inspire your journey as a Patient Leader. Whether you’re curious about health social media or already run your own health community – there is something for everyone!

Webinar Recap: The Limit Does Not Exist: Growing Up With Hemophilia

Join Dakota as he uses his personal experience to smash myths about the ability to live a full life with Hemophilia. If you’re a young adult or a caregiver don’t miss Dakota’s tips for navigating schooling and traveling with Hemophilia.

  • Dakota stresses the importance of routines- it ensures adolescent patients have adequate medicine.
  • He also encourages travelers to carry a  letter outlining treatment plans and contact nearby treatment centers.
  • Dakota reminds those who are newly diagnosed that it’s helpful to surround yourself by those who faced similar challenges. He encourages anyone to reach out and chat!

Follow Dakota on Facebook and Twitter.


Dakota Rosenfelt is a 21-year-old severe Hemophilia A patient from Kansas City, MO. Dakota is a second year Doctor of Pharmacy student at UMKC School of Pharmacy aspiring to be a Medical Science Liaison for the hemophilia community!  

It’s time to flip the patient – and WEGO Health. Meet WEGO Health Experts.

Today, almost exactly 10 years since founding WEGO Health, we are launching a bold new platform called WEGO Health Experts. Our goal is to eliminate the barriers companies face when trying to find patient leaders with the time, skills and expertise to consult on health-related projects.

With today’s roll-out, we will soon bring thousands of highly skilled and passionate patient experts into the sharing economy and connect the health care industry to a massive, untapped workforce.

We’re doing it by flipping the patient.

With a hat tip to the Robert Wood Johnson Foundation’s Flip the Clinic experiment, WEGO Health Experts will reset how healthcare views patient leaders. For decades now, the healthcare industry has looked at patients – including patient leaders – as guest speakers, as test subjects, as numbers in a cohort. But at the end of the day, they have been defined by their illness.

What if we flip the patient and see them not just as subjects to be prodded and probed, but as professional peers?

 

Meet an Expert

Take Jessica Gimeno, a prolific writer, TV guest commentator and education consultant. Between TED talks, Jessica coaches executives and she boasts a degree from Northwestern – a skilled professional any healthcare executive would love to have on their team.

But Jessica is also a powerhouse patient leader. Through her award-winning online brand “Fashionably Ill,” she addresses the intersection of living with mental illness and chronic pain. She’s a contributor for Huffington Post, and she’s the center of a documentary on Asian American women and mental health.

It’s time to flip our thinking about Jessica. Yes, she’s a patient, but why not not capitalize on all her assets, including her professional background, her passion and her experience as a patient leader?

Jessica is one of thousands of professionals in our growing network of patient leaders. These are individuals who have an outsized impact in their work because they have the competitive advantage of living every day with a challenging health condition.

 

Whether it’s a brief project or a long-term engagement, imagine an on-demand workforce of patient leaders who bring skills, knowledge, relationships, and the passion to transform healthcare.

WEGO Health Experts represents a flip for WEGO Health as well. Until now, we’ve connected our members to each other but shielded them from direct contact from an industry known to deluge patients with ads, PR pitches, or worse. The WEGO Health Experts platform goes 180 degrees in the other direction – providing a platform for Patient Leaders to build a profile that showcases their professional skills, their work history, and their passionate support for their communities. Now any company can join WEGO Health Experts to hire any Patient Leader signed up for Experts, on-demand.

At WEGO Health, we know this flip to openness carries some risk, but it’s worth it. It’s always been our mission to empower patient leaders to change healthcare – now we’ll unleash thousands of Experts to transform it from the inside out.

If you are a patient leader, post your skills and your profile on WEGO Health Experts now. If you are ready to work with Patient Experts, there’s no obligation to create your organization’s profile now.

Together, we’ll flip the patient – and healthcare.



WEGO Health was created by Jack Barrette, a former Yahoo! executive focused on lifestyles, health and medicine. At Yahoo!, and throughout his career in healthcare, Jack has seen millions of people struggle to find credible, useful health information online. WEGO Health was born as a result of these experiences. Jack lives in Boston with his beloved wife and terriers. He believes fervently in giving back to the community through his non-profit work, and also in the health benefits of good wine.

WEBINAR RECAP: The Epilepsy Life: Taking Control

Are you a patient or caregiver of someone experiencing seizures? Whitney Petit, a patient leader of the Epilepsy community, is offering tips & insights on taking back control of your life. Learn how to identify possible triggers & what kinds of self-care can prevent future seizures. Whitney will offer her personal tips and the right questions you should be asking your doctor.

 

WEBINAR RECAP

  • Are you considering the possible triggers around you? Whitney found she was affected by apples and grapes, common seizure triggers found in cats and dogs!
  • Are you getting enough sleep? Whitney suggests tracking your sleep activity with a FitBit to help you identify any connections between sleep patterns and seizures.
  • Do you like your doctor? Whitney reminds us you must find the right fit. Just because everyone you know loves your doctor doesn’t mean you need to love them! Be your own advocate and take control to find a doctor you feel confident with.

 


Whitney is a long time Patient Leader and Blogger in the Epilepsy community. She uses her journey with epilepsy to help and motivate others to practice self-care, better navigate the world of healthcare and live a fulfilled life with any chronic illness. There is life beyond the diagnosis.

Be sure to check out her website, CF-Epilepsy.com & Social Networks: Twitter , Instagram, and Facebook.

#WEGOHealthChat Recap: Using Different Media to Get Your Message Out

During our WEGO Health Awards week, the finalists of Best in Show: Twitter, Best in Show: Instagram and Best in Show: YouTube hosted a twitter chat discussion surrounding different medium contents.

Images, videos, written content – there are numerous ways to get your story out there. We turned to the 2016 finalists to learn what the best medium is and what are tips to make it more effective.

So what is the best type of media to use; pictures, words or images? 

Our patient leaders believe it depends on the platform your using and the angle of your advocacy efforts. They suggest finding balance between pictures, words, and images, but also utilizing your analytical tools to find what your community wants to see.

Our finalists also shared various tools such as Canva, Prisma and OBS Studio to create compelling content, which only increases the number of shares and likes!

But how does your content measure up against platform algorithms? Our patient leaders offer 4 tips to make sure your content is showing up on viewers’ feeds! Learn these and more by downloading the recap here!

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