Archive for ‘cancer’

April 23rd, 2013

Guest Post: A Poem is Strong Medicine

by Susan

Today’s guest post is written by Karin B. Miller, editor of  The Cancer Poetry Project
***
I was four months pregnant with our first child when my husband was diagnosed with cancer. How would I cope? I wrote poetry.

Back in college I was known for writing poetry and my friends teased me about not having to interview with …Read More

January 24th, 2012

Now Updated: Cancer & Your Bones Sharing Hub!

by Susan

As we continue to strive to empower Health Activists and create features that appeal to you, WEGO Health is excited to announce our updated Sharing Hub – “Cancer & Your Bones.”
 
We heard your request! Based directly on Health Activist feedback, we have revamped our Sharing Hub, “Cancer …Read More

September 14th, 2011

Announcing the Blood Cancer Channel on WEGOHealth.tv

by Natalia

We have launched a whole new channel on WEGOHealth.tv dedicated to sharing Blood Cancer information, treatments, awareness, and the awesome Health Activists within the online community! This week’s videos feature Health Activists sharing their wisdom and experiences with Multiple Myeloma, Chronic Myeloid Leukemia and Acute Myeloid …Read More

June 2nd, 2011

4 Health Awareness Events to Share in June

by Amanda

June is here and with it comes a collection of health observances that you can learn about and share with your community. Even if your community’s awareness month, week, or day falls on another part of the year – we hope you’ll join the WEGO Health Community in highlighting these health communities and the Health Activists that lead them!

First …Read More

January 4th, 2011

Health Activists Who Could: Make It Your Mission (Statement)

by Amanda

With the dawning of a new year comes the resolutions, and, in the WEGO Health community, we’re hearing a lot about Health Activist Mission Statements. Alicia Staley (star of Awesome Cancer Survivor and Tweeting as @stales) wrote a terrific post about creating a Health Activist Mission Statement.

Her Mission Statement is a testament to her power as an advocate and to her reach as an inspirational …Read More

May 7th, 2010

Spotlight: Greg Stephens, The National CML Society

by admin

Spotlight on: Greg Stephens, founder of the National CML SocietyActive in the CML community: since January 2005What do you do when you’re not raising awareness about CML? I enjoy biking, the outdoors, spending time with family and friends, and playing with my son, Tyler.

You were active in the CML community for some time during the course of your family’s journey with CML—what made you decide to start a non-profit?
The thoughts of starting a non-profit for CML began about a year into my family’s journey. I was in the consulting business and my mom was a Human Resources professional. As we sat in countless waiting rooms, we began to wonder if we’d ever run across another CMLer (as we say in the CML community when referring to other patients). We also began to realize the lack of ground-based services offered to our community. Don’t get me wrong, there are a variety of services provided by organizations that are truly wonderful, it was just that there were no similar services offered strictly for CML families.


In August of 2007, with our family still reeling from the loss of our mom, Carolyn, the work began. Over the course of her journey, my mom would keep copious notes on her treatment, the things she felt emotionally, and those things that she thought would be so nice to see in the CML community. When we began to form the organization (originally formed as Carolyn’s Hope), we went straight to those notes and began to brainstorm on ways to bring those thoughts to fruition in the community.


Carolyn’s journey affected the entire family, and the journey doesn’t really end when you lose someone. It simply takes on another dimension. The Society (formerly Carolyn’s Hope) was just a natural progression for our journey, which continues today.

What would you most want to say about CML to someone who doesn’t have experience with it?
This is NOT the diabetes of Cancer! One of the biggest dangers we see in our community, and the healthcare community for that matter, has been complacency.


With the advent of TKI therapy (tyrosine kinase inhibitors), drugs such as Gleevec, Sprycel, Tasigna, and others have taken a disease that once had a very short lifespan, and made it one that is highly treatable in most cases. Again, most cases. The danger comes when nonchalance finds its way into how we, as CML families, view the disease, and even more so when the community we rely on for care doesn’t see this as something that serious. Every person’s journey is unique and it has its own subtleties. Yes, there are the common things, but one person reacts totally different than another, as so on. As an organization, we want the public to know that CML, although highly treatable in today’s world, is still a very serious matter and needs to be addressed accordingly.


If you’re interested in starting a CMLConnection group in your area, you can get in touch with Greg and the National CML society +/2+/.

Be sure to check out Greg’s +/3+/ and welcome him to the community!
Interested in learning more about CML and other types of Leukemia? Join the +/4+/.
Already active in the CML Community online? Learn more about our upcoming …Read More

April 19th, 2010

Spotlight: Annie, Living with CML

by admin

Spotlight on: Annie, author of the blog Living with CML Active in the CML Community since: My son Steven was diagnosed March 2006Occupation: I fix, build, repair, re-program, de-virus, and upgrade computersWhat do you do when you’re not raising awareness about CML: Photography, travel as much as possible, catch up with family and friends

What prompted you to start blogging after you learned of Steven’s diagnosis in 2006?Writing has always been an outlet for me. Most times when you go through something this huge in your life, others cannot …Read More

April 9th, 2010

Upcoming Insight Groups: CML Health Activists

by admin

We are holding online focus groups on Tuesday, May 25th for people who are active contributors to the CML community online. These groups are being held on behalf of one of WEGO Health’s sponsors.

Focus groups will be held at Noon, 4PM, 6PM and 9PM Eastern Time on Tuesday, May 25th. Each session will last one hour and is held remotely. Participants can join from anywhere in the country, but will need to be online …Read More