This is NOT the diabetes of Cancer! One of the biggest dangers we see in our community, and the healthcare community for that matter, has been complacency.
With the advent of TKI therapy (tyrosine kinase inhibitors), drugs such as Gleevec, Sprycel, Tasigna, and others have taken a disease that once had a very short lifespan, and made it one that is highly treatable in most cases. Again, most cases. The danger comes when nonchalance finds its way into how we, as CML families, view the disease, and even more so when the community we rely on for care doesn’t see this as something that serious. Every person’s journey is unique and it has its own subtleties. Yes, there are the common things, but one person reacts totally different than another, as so on. As an organization, we want the public to know that CML, although highly treatable in today’s world, is still a very serious matter and needs to be addressed accordingly.
If you’re interested in starting a CMLConnection group in your area, you can get in touch with Greg and the National CML society +/2+/.
Be sure to check out Greg’s +/3+/ and welcome him to the community!
Interested in learning more about CML and other types of Leukemia? Join the +/4+/.
Already active in the CML Community online? Learn more about our upcoming …Read More
April 19th, 2010
Spotlight on: Annie, author of the blog Living with CML Active in the CML Community since: My son Steven was diagnosed March 2006Occupation: I fix, build, repair, re-program, de-virus, and upgrade computersWhat do you do when you’re not raising awareness about CML: Photography, travel as much as possible, catch up with family and friends
What prompted you to start blogging after you learned of Steven’s diagnosis in 2006?
Writing has always been an outlet for me. Most times when you go through something this huge in your life, others cannot …Read More
April 9th, 2010
We are holding online focus groups on Tuesday, May 25th for people who are active contributors to the CML community online. These groups are being held on behalf of one of WEGO Health’s sponsors.
Focus groups will be held at Noon, 4PM, 6PM and 9PM Eastern Time on Tuesday, May 25th. Each session will last one hour and is held remotely. Participants can join from anywhere in the country, but will need to be online …Read More