Archive for ‘“health activism”’

March 9th, 2012

Death of a Soldier: Honoring Sickle Cell Disease Health Activist Phyllis Zachery-Thomas

by Susan

 

Here at WEGO Health we spend a lot of time talking to people with serious health conditions and the natural consequence of that is that sometimes, we lose friends and partners along the way.  This morning we got an email from the Sickle Cell Disease community letting us know that a long-time member of WEGO Health, Phyllis Zachery-Thomas, had passed away.  Phyllis wasn’t just the founder of the SCD Soldier Network; she was a passionate, energetic, and warm friend who inspired all of us with her work and her dedication to her community.  She was also one of the Health Activists that we’ve had the good fortune to meet in person; when Phyllis drove from Atlanta to Boston to attend our Health Activist meet-up in 2010, she became part of WEGO Health’s family forever.  It’s a sad day when you lose someone, but WEGO Health is honored to have spent time with Phyllis and to have been witness to her work.  Today, we want to honor her dedication to Health Activism and what Phyllis has brought to the Health Activist community:

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July 11th, 2011

The Benefits of Using Google+ as a Health Activist

by Amanda

It came to me as no surprise that many Health Activists are already on Google+ and braving the first portion of confusing adaptation to dig in an learn how they can latch on and really take advantage of possible opportunities therein. Health Activists are experts at communicating and often among the earliest of early adopters. We love social and we love sharing resources – enter Google+.

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March 2nd, 2011

March HABC: I Disclose…

by Amanda

(This is a metaphor)

From one of my favorite websites, (dictionary.com):

dis·close [dih-sklohz] verb

1. to make known; reveal or uncover: to disclose a secret

2. to cause to appear; allow to be seen; lay open to view: In spring the violets disclose their fragrant petals.

The word “disclose” was first used right around the time of The Renaissance, an era of rebirth: artistic expression, intellectual transformation, and scientific advances. A time when people rose from the darkness of the past centuries and began opening themselves up to a new way of life. Now, whether this is a more romanticized version of what actually happened or not – the idea of a Renaissance from the Dark Ages fits perfectly with our March theme of Health Disclosure (and the upcoming first day of Spring!).

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March 1st, 2011

Do You Disclose? March is Health Disclosure Month!

by Amanda

photo credit bowery on flickr

To tell or not to tell – that is the question. If you’re living with a chronic condition, have health symptoms, or are undergoing treatment of any sort – disclosing that information to others has been a topic that’s crossed your mind. Who do I tell and how much do I say? When is the right time to bring this up? Is this TMI? Will this change how people think of me? Will talking about my condition influence my work life, love life, and family life? How can I share what I’m going through with people I care about without worrying them? How do I ask for what I need?

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February 25th, 2011

February Poll Results: How You Feel About Your Condition & Relationships

by Amanda

Earlier this month, we asked you to think about how your condition influences your relationships and how you really feel about that. We received a lot of responses – making me realize just how important this topic is to Health Activists. The challenge of relationships is, go figure, not made any easier by adding the challenge of living with a chronic health condition.

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February 17th, 2011

One Small Step for Social Media Junkies, One Giant Step for Pharma-kind

by Amanda

I’d planned to fold my hands and participate only with my eyes and mind during Pharma’s first foray into the world of the mysterious, often untamed Twitter chat (#Rxsave). But after @AstraZenecaUS’s first question: “What is best way to increase awareness of prescription savings programs?” – how could I not jump in?

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January 14th, 2011

Interviewing Health Activists: Katie Schwartz, Founder of Dear Thyroid™ Part 2

by Amanda

Here is Part Two of my interview with Katie Schwartz, founder of Dear Thyroid. (Click here to read Part One)

Katie (@dearthyroid)

Amanda: Dear Thyroid is a different kind of health community and it says so right in the first line of the About page. What made you decide to bring your crusade online?

Katie Schwartz: Being a writer, I have an ongoing love affair with words. I believe that each person (when they are ready) must tell their story in their own words. Our slogan is “Healing our thyroids one letter at a time”. We mean that literally and metaphorically. Write and submit as many letters as it takes. Join our conversations in comments, and on our chat boards.

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January 4th, 2011

Health Activists Who Could: Make It Your Mission (Statement)

by Amanda
With the dawning of a new year comes the resolutions, and, in the WEGO Health community, we’re hearing a lot about Health Activist Mission Statements. Alicia Staley (star of Awesome Cancer Survivor and Tweeting as @stales) wrote a terrific post about creating a Health Activist Mission Statement. Her Mission Statement is a testament to her power as an advocate and to her reach as an inspirational survivor:

“As a Health Activist, I will work tirelessly to motivate, educate, and inspire others in the cancer communities to achieve their best health. By sharing my personal experiences with others facing a cancer diagnosis, I will do my best to improve their treatment and survivorship experiences. I will reach out to all cancer community partners including health care providers, pharma companies, and medical institutions to ensure everyone experiencing a life touched by cancer will always have the best resources and support available to them. Cancer can’t beat a Community!”

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January 4th, 2011

December Blog Carnival Recap: Your Top 10 of 2010

by Amanda

Last year (well, last month!) we asked you what 10 things you liked best about 2010 and you reported back with awesome recaps. You reminded us of your best posts, big milestones, and favorites from your past year in Health Activism.

Check out a few highlights:

Kelly remembered this milestone fondly: “1) American College of Rheumatology Scientific Meeting. Attending the weeklong meeting in Atlanta was a milestone for me, for my blog, and for the RA community. This was the first time a patient attended the meetings as press. However, the week itself was also full of milestones that I cannot easily summarize. There was one special blog post to describe how it affected my perspective: American College of Rheumatology Annual Meeting 2010 and a little video telling the highlights: Video: Thoughts from American College of Rheumatology (ACR) 2010.”

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January 3rd, 2011

New Year, New You: Setting Health Activism Goals

by Amanda
Welcome to 2011, it’s going to be the best year of Health Activism yet! (And that’s a pretty bold statement considering how amazing 2010 was.) I hope you will consider this very blog post your introduction to the new and improved WEGOblog. Please make yourself at home, take off your coat, stay awhile – we have an exciting array of posts to offer you this year. There will be a variety of: in-house entertainment, take-aways, activities, information, media, and more. We catch up on new trends and create some of our own. There will be both familiar faces and new ones. New friendships will be formed and new ideas will be generated.

photo credit bill barber

The first offering made by our WEGOblog (we will share it, you and I) is that each month will have its own theme! You can think of it like a month-long theme party but without the time-intensive legwork involved in preparing the perfect costume (and sadly, without the delicious refreshments). Come as you are – the theme is guaranteed to be both fun and relevant to your Health Activism journey – no matter if you’re brand new to the game or a seasoned veteran. There will be lots to think about and the theme itself is something you can feel free to take back to your own communities as a way to engage your readers, members, and friends each and every month!

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