Archive for ‘how to’

October 25th, 2011

Health Activist How To: In Person Events Part 2

by Amanda

Get ready to hear even more about in person events from our own super-sociable public-speaking extraordinaire Bob Brooks.

In our first video of the series – Bob discussed what you need to do when you’re planning to attend an in-person event – what you should say, who you should plan to talk with, and how to get your …Read More

September 19th, 2011

Health Activist How To: In Person Events Part 1

by Amanda

Every day, it seems there are more in person events for Health Activists and their communities. Whether it’s a conference, an awareness event, a tweet-up, a networking event, or something in our Speakers Bureau Program – there are so many important offline events to attend. By getting involved, it’ll help solidify your …Read More

July 12th, 2011

New Webinar! Health Activist How To: Video

by Amanda

We’re really excited about our new channel and how it’s shared the mission of Health Activists in a new, interactive way. There’s nothing quite like seeing your favorite blogger share their thoughts in action. Video is a huge component of the online world and growing daily in how it is being integrated into …Read More

May 26th, 2011

A Health Activist’s Guide to Effective Online Advocacy

by Amanda

Whether you’re a seasoned Health Activist ready to take everything to the next level of awesome or just starting out on your advocacy adventure – I’ve compiled a Health Activist’s Guide to Effective Online Advocacy with some things you should always keep in mind as you interact with your health communities!

…Read More

February 10th, 2011

Guest Post: February, Family, and Friends

by Amanda

Today’s post is a wonderful Guest Post (and must-read!) by Health Activist Julia Olenik blogger at the awesome blog Reasonably Well. In her guest post she shares her experience with that third relationship conflict mentioned in our theme: your condition vs. your family (and friends). Julia offers real, honest advice and I know you’re going to enjoy reading this as much as I did. –Amanda

February, Family, and Friends

The month of February brings with it several interesting events; one being Groundhog day, when it’s so gratifying to anticipate the end of winter. Another is Super Bowl Sunday and the best excuse ever to gather in large boisterous crowds in front of huge televisions while consuming large quantities of really-bad-for-you snacks.

But my favorite day by far in February is Valentine’s Day. Why? Well, gifts of chocolate in heart shaped boxes from a wonderful hubby for many years are very, very good things. But aside from chowing down on a serious amount of high quality candy, Valentine’s day also is a great time to for me to take time to appreciate not only my marriage, but all the relationships with others around me.

When I think about my relationships, mostly I think about how fortunate I am to have these special folks around me, especially since autoimmune disease entered my life. My ties with my family and friends were certainly tested during the early days of my diagnosis. I am incredibly thankful that these vital bonds survived, and eventually flourished. But it wasn’t an easy process.

Seven years ago, I was diagnosed with Sjogren’s syndrome, and my life changed in ways that I would never have imagined. I wish that I could say that I accepted these changes with grace, but I didn’t. No, I became crabby and very self-centered. Not that I didn’t deserve to be a bit cranky: Sjogren’s brought with it bone-crunching fatigue, joint pain, the classic dry eyes and dry mouth. It also took away my job and several of my hobbies.

I was not a happy camper.

As I struggled to adjust to the enormous changes that my body was making, I became aware that my social circle was changing, too. Several friends that I had considered close began to just……fade away. My family and closest friends often looked at me with puzzlement and concern. They didn’t know what to make of me, and I didn’t know what to make of me, either. It was a difficult time, and I knew that if my ties with my loved ones were to survive, I needed to look to the wisdom and experiences of others who had successfully made this journey before me.

I found a helpful perspective from another woman dealing with chronic illness in the book A Delicate Balance: Living Successfully With Chronic Illness, (Perseus Publishing, 2000, pg. 191) In it, author Susan Milstrey Wells dove headlong into these same issues. She discussed the many ways that chronic illness may impact all of our relationships – those as a spouse, a child, a sibling, a parent, a co-worker, and as a friend. She summed up her experiences by saying:

Continue reading after the jump… …Read More

July 30th, 2009

Have you joined a Group?

by admin

Our goal here at WEGO Health is to be the home of Health Activists: a place for those passionate members of the online health community, who love to help others with information, resources and support. Many of our members tell us they are looking to connect with other Health Activists who are passionate …Read More

July 1st, 2009

We Love Twitter

by admin

This Week on WEGO Health Loves: TwitterNo really, we do. Seems like everyone is talking about Twitter these days and everyone has an opinion about how best to use it. Though there is one thing we really love about Twitter – the people!We’ve met some many wonderful health folks, including:

And those are just a few! Please visit our growing community…Read More

June 9th, 2009

Silent Illnesses: How to Explain it to Others and Find the Support That’s Right for You

by admin

Modern biomedicine is rife with dilemma. Cells and DNA, hormones, lesions and blood counts are agents of the biomedical diagnosis that often explain a condition as if it were analyzed outside of the patient’s body—like a weed that can be uprooted before it begins to envelop the garden. Yet illnesses are not just pathological …Read More