Congratulations to the winners of our book giveaway, who will each be getting 8 Keys to Stress Management by Elizabeth Ann Scott! We asked you to tell us what you do to manage your stress every day and your responses were great. Participants described their strategies, which ranged from finding quiet spaces, to confiding in loved ones, writing out feelings and participating in physical activity. Out of the 140 responses, we had to narrow it down to just five!
Julie, winner of Geek Health Activist at the 2014 WEGO Health Activist Awards for her blog, took time to tell us how being a Health Activist has affected her life!
1. How/why did you become a Health Activist? Tell us your Health Activist story!
Narcolepsy is often laughed at as a joke about someone falling asleep in awkward places, but it’s actually a real condition with fascinating symptoms unlike media portrayals. I was diagnosed with narcolepsy with cataplexy in 2007, and didn’t like the jokes and misconceptions, but it wasn’t my instinct to become a health activists. Instead, I hid my condition and hoped that ignoring it would make it go away. I studied rare disease health policy in law school and felt that our society deserved to learn about the REAL narcolepsy, a neurological disorder of the sleep/wake cycle affecting 1 in every 2,000 people. Soon after graduating from law school, I started advocating for narcolepsy in Washington, DC. In 2012, I published my book “Wide Awake and Dreaming: A Memoir of Narcolepsy”.
We’ve collected a roundup of some popular health articles that we saw on the web and shared on our WEGO Health social media sites this week. Check them out below:
The development of an artificial pancreas may impact how patients with Type 1 diabetes live. The artificial pancreas was developed by Boston researchers.
Kati, winner of Best in Show: YouTube at the 2014 WEGO Health Activist Awards for her YouTube Channel, took time to tell us how being a Health Activist has affected her life!
1. I became a mental health activist just over two years ago after realizing how hard it was for all people to gain access to the help and support they needed. I noticed that the cost of mental health care was rising and is only readily available in city centers around the world. Also, there is such a stigma and lack of understanding when it comes to mental health. So I created my YouTube videos to help disperse free and helpful information for those who need it.
Carrie, winner of Best Kept Secret at the 2014 WEGO Health Activist Awards for her blog, Just Mildly Medicated, took time to tell us how being a Health Activist has affected her life!
Hello WEGO Health community! My name is Carrie and I am so excited to be the WEGO Health’s Best Kept Secret for this year. I want to tell you a bit about me and how I stumbled into this world of health activism. I’d like to think I kicked the door in while looking super tough in a get up of mostly black clothes and killer boots while the wind (from an undisclosed source because why would there be wind after kicking a door in) blowing my long but somehow fashionably styled hair… but it was actually more of a stumble into health activism.I was diagnosed with an autonomic disorder, Dysautonomia, after struggling with seemingly random symptoms for a few years.
Hallie, winner of Advocate for Another at the 2014 WEGO Health Activist Awards for her blog The Princess and the Pump, took time to tell us how being a Health Activist has affected her life!
How/why did you become a Health Activist? Tell us your Health Activist story!
I became a Health Activist when my daughter was diagnosed with Type 1 diabetes at age 3. When your child is diagnosed with a chronic health condition for which there is no cure… and when that disease requires you to become not just a mother but the person keeping your child alive… you can feel pretty helpless. With T1D, you can count the carbs you eat exactly right and dose the exact amount of insulin… you can take into account activity and illness and hormones and the million of other factors… and you can still get results that are less than ideal. I like that say that we don’t control diabetes. T1D is not controlled. It is managed. Anyway, I don’t like feeling helpless. I hate watching my child suffer or in pain and knowing I can’t fix it and I can’t make it go away. But what I can do is advocate. I can be her voice and I can teach her to use her own voice. I do everything in my power to raise money and raise awareness. And hopefully get us just a little bit closer to improved technology to help treat and manage the disease and ultimately … a cure.
WEGO Health is holding a book giveaway!
Managing your stress levels is crucial for staying healthy. That’s why we’re giving away the book 8 Keys to Stress Management.
Starting June 11th, you can enter to win the book, which is full of useful tips for managing stress.
We’re giving away 5 books, and will choose the winners June 25th.
Michael, winner of Rookie of the Year at the 2014 WEGO Health Activist Awards for his blog, took time to tell us how being a Health Activist has affected his life!
I’m a 23 year old Chronic Migraine and Churg-Strauss Syndrome(Vasculitis) advocate who has been writing now for 6 short months working to build a loyal and aware audience. I write poems and articles that not only help others with their pain but allow them to express it through my words to loved ones, caregivers, and even doctors at times! I recently had a reader print a poem and bring it to a neurologist to explain some sensations and amazingly it helped them understand! All I can hope for is to do more in the future for those in chronic pain!